Tuesday, November 5, 2013

Frequent Hospital Flyers

It has occurred to me, that I belong to a very elite group of parents that I will call the Frequent Hospital Flyers! To belong to this group you have to have a chronically or sometimes critically ill child who spends copious amounts of time causing your heart to stop and needing to be either rushed to the ER or admitted to the hospital. Sometimes both. Trust me....if you aren't in this group....thank your lucky stars and send up a little prayer every now and then for those of us who are.

Of late I have seen more and more parents becoming a part of the FHF club. I know several parents with kids like David who have Cerebral Palsy and all the not so fun things that go with that such as lowered immune system and seizure disorders. They and their kids know the inside of a hospital just as well as we do. Then there are the parents (and anymore there are many of them) whose kids are dealing with cancer. I can barely type the word....yet this is their reality. Their is a continuous hell of hospitals that I can't even imagine. I watch facebook as they are in for treatment, then their stay continues because the numbers don't bounce back and then when they finally get to go home for a week or two, often they are rushed right back when a fever spikes. It is a vicious cycle of ER, hospital and then hospital, ER! It is a rough life. 

On some occasions like a scheduled treatment or surgery, there is time to prepare and pack a bag so that the parent who is staying with the child is at least semi comfortable. However, in many cases when the emergency happens such as a seizure or a temperature spike, there really isn't a lot of time to pack what you need in case the ER visit turns into a hospital stay. And even if there was time to pack, chances are your mind is on your kid and not what is going to make you comfortable. It is also hard after the fact when you are there and you try to tell someone else what you might need. I learned this lesson well on my last visit to the ER and hospital stay with David. His seizure happened and there was no time to prepare before heading to the hospital so I was left to the mercy of my 17 year old son. Bless his heart he tried, but I ended up with 4 pair of socks, 2 bras, underwear and a pair of sleep shorts that are so short I won't even wear them around my kids. Sigh!

Today I decided that I would give a little heads up to you new parents that have joined this little club of ours and maybe even give a tip or two some veterans. Now before I go further, what I know and what I do are often two different things. That is why I ended up with underwear, booty shorts and no real clothes this time. It will not happen again. 

Keep a bag packed and keep it somewhere close so if you find yourself on the way to the ER you can toss it in the car. If the ER visit turns into a hospital stay.....then you are good to go. In that bag should be yes....underwear, but also a change of clothes and something comfortable to sleep in (preferably not booty shorts), toothbrush, toothpaste and a hair brush and hair ties. Maybe a little make up too. IMPORTANT: Don't forget any medications you take!!!! I also like to pack a couple of bottles of water and maybe a couple 100 calorie snack packs. Vending machine fair gets old and expensive.

Things you might not know about hospitals:
Most hospitals encourage parents to stay overnight with their children. Because of this, arrangements are made for parents. At our usual hospital, there is a parents galley stocked with coffee, tea, cheese, crackers, peanut butter, jelly and cup a soup. In the morning the kitchen brings up muffins for the parents and for lunch and dinner cold sandwiches. The hospital also has a Ronald McDonald room where you can do laundry, watch tv (parents and family) and snacks are provided. They also have a shower room for parents of kids in PICU along with sleep rooms as there is no comfortable place to sleep in PICU. The laundry facility makes it easy to have only a couple of changes of clothes.

Other hospitals we have stayed at give parents meal trays for free and some have huge laundry rooms for family laundry instead of just a single washer and dryer. It just depends on the hospital.

Even in the best hospitals though, sleeping is not always easy. Not because your aren't exhausted, but because there is nothing comfortable to sleep on. Most rooms are equipped with a reclining chair. Careful though because the minute you move it tries to fold you up in it. You can request a cot but remember.....a thousand other people of varying sizes and weights have slept on that cot. Prepare to either sink between the springs or feel each spring in your back because your mattress is only 2" thick. Some rooms provide an extra hospital bed for the parent but no one has ever slept well on a hospital bed. If you don't mind sleeping in another room from your child, some hospitals have sleeping rooms for parents but I was never comfortable with that. Basically what I am saying is.....don't plan on sleeping much during your stay!

If you are on a budget, avoid the cafeteria as much as possible. Hospital cafeterias are notoriously expensive and seldom is the food as good as you think it will be. Also....avoid the gift shop too. Again....over priced and not worth it. Granted though....as a parent with a child in the hospital, the hours can be tediously long and you as an adult can watch only so much Spongebob. You have to think about your mental state too. It is always good if you think about it to grab a lap top or iPad from home if you can. If not....your trusty smart phone will do in a pinch (but of course you must remember the charger). Hospitals usually have an easy hookup to their Wifi and this at least puts you in touch with the world outside your sanitized hospital walls. It is amazing how things like facebook and Candy Crush can become your best friend during a hospital stay. I also downloaded Kindle on both my phone and iPad. Reading is an amazing distraction to drown out dinging monitors. When your child is sick, it is hard not to focus entirely on them...... and your needs will fall through the cracks. This is why planning ahead is so beneficial.

Yes, I belong to an elite club. A club where any day could end us up in the ER and any ER visit could turn into a hospital stay. Its not fun but you adjust and you learn to make it as comfortable as you can for all involved. Maybe not booty short sleep short comfortable....but comfortable none the less.

1 comment:

  1. This so reminds me of a hospital stay I had in 1990 in Seattle WA in the winter! He & his wife were in a terrible auto accident (she was killed) and he was in ICU in a small city hospital. My flight out of Mid-Continent was canceled because of snow and ice. A different airline called me the next morning telling me they had seen the emergency status flag & I flew out of ICT to Chicago; then to Seattle! When I got there, they had an unheard of 15" of snow and I was scared to get in a car with anyone 'cause I had heard brother Rex talk about that population's ignorance of driving in our familiar winter conditions. In his lucid moments, he contacted a friend (originally from Kansas) who owned his own taxi service - all cadillacs - in Seattle to meet me at the airport. Well, geez...I digress from the point of this comment. The hospital was in a residential neighborhood & blocks from the nearest motel and there was no way I was getting in a city owned taxi or bus to make that trip and I told Nursing Service this. ICU had a waiting room about the size of my bathroom! BUT, behind a door was another room just big enough for and equipped with a 'chair that unfolded to a cot'. I was told it was mine for as long as I needed it. I soon discovered that this hospital was built with absolutely NO INSULATION and that in the middle of the night my bedroom was gonna be, as I remember, about -2°!!! I actually looked for snow on the floor! I was never given enough blankets so slept fully clothed and used all of my packed clothes to either shove here or there or to cover up with. Then, as you might imagine, after a couple of days, I really needed a shower! Oh my gosh, that took an act of Congress and I was put on a very TIGHT schedule and I know they had a timer on me.
    This was nothing compared to what you FHF parents endure; but I thought maybe it would give you a bit of laughter. Laughter is always the best medicine!